Baby Esa Christian Lauano
FAMILY SEEKS HELP ...
SATURDAY, 19 JANUARY 2013 14:51
SEEKING HELP: Time is running out for Baby Esa seen here with his father, Semi Aserona. Esa Christian Semi turned two months old this week.
The baby boy from Tufulele was born with hydrocephalus or what is commonly referred to as “water in the brain”.
This is an abnormality that affects the nervous system and develops when the normal flow and absorption of cerebrospinal fluid in the brain is blocked resulting in excessive accumulation of fluid in the ventricles of the brain. This means that the size of his head is larger than normal.
Left untreated, in addition to pain and suffering, his condition leads to significant brain damage, severe developmental delay, blindness, and ultimately death.
This week after close to two months of waiting for word of an opportunity for him to be sent overseas for an operation, his family received very disappointing news. His mother Fa’afetai said the doctors at the Paediatric Ward at the Tupua Tamasese Meaole Hospital confirmed that no operation can be performed.
“We were told to take him home and to continue caring for him,” she said.
They were also told that he would eventually die. Baby Esa’s head has grown from 35cm at birth to 64cm and it continues to grow.
Despite word from the doctors, his maternal grandfather, Faimalo Matatumua Apulu continues to hold on to his faith in God.
“They (doctors) are playing God and they shouldn’t tell us that he will die because that’s not for them to say.”
The disappointed Faimalo said this is why their family is seeking help elsewhere.
“We don’t want money or food; we just need help to find a doctor overseas who can give us another opinion on the boy’s condition.”
Faimalo believes that if there is a chance for his grandson to be seen by another doctor, he might be operated on.
“Our family continues to hold faith in God that our child will get help somehow.”
His mother said she was saddened by what she was told since the doctors had earlier said to get her baby’s passport ready so that he could be taken overseas for surgery.
“Now they tell me that it cannot be done so we come to seek help here at the Samoa Victim Support Group.”
Her husband Semi Aserona pointed out that during her pregnancy, his wife didn’t have any scans to check the condition of the baby.
“She did have check-ups but perhaps if she had had a scan done, this could have been avoided.”
Baby Esa is the couple’s second child. Their eldest is a 3-year-old girl.
“The only way to keep him from crying is to rock him in our arms but besides that and the problem with his head growing bigger and heavier every day, he is a good baby.”
If anyone can provide this family with assistance the family can be contacted on +685 7780655.
Additional information on the baby’s condition was obtained from the website, What is CURE Hydrocephalus?